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Nystagmus Information, including the Nystagmus Information Packs (NIP)

In 2017, we released the Nystagmus Information Pack, which is available for free download from the University of Sheffield website. The information pack was designed as a resource for patients and their families, as we were aware patient information on nystagmus was not always available.

We are now evaluating the accessibility and content of the Nystagmus Information Pack using an online evaluation questionnaire. If any of you have up to 10 minutes to complete the questionnaire, we would be very grateful. The link to the questionnaire is below.

Feel free to forward the questionnaire on to anyone interested in nystagmus. We would like to gather the views of different people where possible. The evaluation project and questionnaire has received ethical approval from the University of Sheffield. The deadline to complete the questionnaire is Friday 17th July.

If you have any questions about the evaluation project or the questionnaire, please contact us privately.

Link to Evaluation Questionnaire: https://forms.gle/apdQGshHXpmReBq69

Link to Nystagmus Information Pack: https://www.sheffield.ac.uk/health-sciences/our-research/themes/eye-movement/nystagmus-information

 

Thank you and kind regards,

Anne Bjerre a.bjerre@sheffield.ac.uk 

Gemma Arblaster g.arblaster@sheffield.ac.uk 

Helen Griffiths h.griffiths@sheffield.ac.uk

Martha Foulds mffoulds1@sheffield.ac.uk  

Statement on Racsim

10 June 2020

 

Dear IOA and OCE Members,

As inclusive, international association, the International Orthoptic Association (IOA) and the Orthoptic Council of Europe (OCE) have diverse memberships that reflect the communities we work in. Right now, people around the world are grieving, angry and mobilizing because systemic anti-Black racisms lives in the world and because black lives matter. The IOA and OCE recognize the unique challenges our black colleagues, patients, and their families face. We stand in solidarity with our Black members. As Associations we find all forms of injustice are unacceptable and believe we are better organizations when we support individuals regardless of race, gender or orientation. 

We want to ensure you that every member is welcome and will be treated equally regardless of race, sex, language, religion, or other status. The IOA and the OCE is committed to upholding our joint Orthoptic Code of Ethics. We expect all our members to adhere to this code and to act with integrity and without discrimination. In addition, as orthoptists we are obligated to treat all our patients ethically and fairly. These values are essential as we work to support our mission of developing and improving the orthoptic profession around the world.

The IOA has flourished because of the diversity of its members and their ongoing efforts to increase our knowledge and improve our understanding of different cultures. We embrace high quality orthoptic care and support treating all people with dignity and respect. Thank you for working together with us.

Be well and be safe.

                                                                                                                  

Jan Roelof Polling                                                                                  Marlis Lenk-Schäfer                          

IOA President                                                                                        President OCE

Statement PDF

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